Tuesday, June 30, 2009

June 30, 2009




Both Grandmas are convinced it's a headful of hair!.......ADORABLE

We are off to see the kids tomorrow! Mark and I and oh yes, the dog are headed out to see the kids. First stop will be Chris, Jill and Baby K. Now that Jill and I know that the color for fall is pink we will have a great time shopping in San Marcos on girls day while the guys take off on their sight seeing day. Not sure what they have have planned for their remainder of our weekend together but it really doesn't matter since our main focus is time with them. We will leave from there to head to Caitlin and Dustin's to see them and their new place. Caitlin is going to gain strength and is working to gain more endurance which is great. I know there is a hockey game to see along with an Air Force Museum and the mountains along with time getting see their surroundings. Maggie has never travelled so our adventure with her could be interesting but fun. Would love to spend more time in both places but summer is a tough time for Mark to be gone long especially this year as far behind as he is with all this rain and the school year is for me especially after last year and wanting to conserve what few days I have for this upcoming year. Things always have a way of working out and regardless we will be getting to see the kids and that is what is most important.

Friday, June 19, 2009

June 19, 2009

Day 150 - Wow, What happened to last week? I would have sworn I posted. I didn't feel well at all but that is no excuse. My leg gave me fits so I avoided doing much so that I didn't have to be on it. Chris and Jill keep me posted on pregnancy and baby. He called the other night. He can faintly feel the baby's kicks. He says Jill is convinced it is quite the kicker. I told him it is definately his child since the word kicking can still give me flashbacks of his internal kicking abilities. Caitlin and Dustin are busy in Tucson. Dustin is playing with a hockey group down there and Caitlin is working at getting back into shape, her dancing, music and schoolwork. When I do get a chance to talk to her they are always so busy which is a good thing. Had an early father's day dinner with dad last night and had a wonderful dinner with him. Dinner was wonderful and loved visiting with him. We visited about his travels and our upcoming plans. Other than the wonderful wet weather not much else is going on. Hopefully I will get back to posting more regularly. If you are someone who checks this I apologize for my forgetfulness.

Monday, June 8, 2009

June 8, 2009


Jill and Baby K at 18 weeks

Day 139 - Feel like it is halfway time. Jill is almost to the halfway point with baby K and doing well. I enjoy visiting with Christopher and getting his updates. Caitlin is just past the halfway point with this term of her college classes. My right leg is starting to feel somewhat tolerable about half of the time (for whatever reason it decided to have severe cramping starting Saturday morning and would not let up until today and if I don't try to be on it for more than a very short bit it is somewhat tolerable about half of the time). Caitlin flew home to Tucson on Friday. It was a long day for her making it exceptionally hard since she was also anxious to get home. Her friend, Amy, came with us to see her off and she was very patient and understanding of Caitlin's anxiousness to get back to Tucson. Her flight was delayed several hours getting into Tucson but from what little I heard from her I think she was very glad to be back. It continues to rain in just enough spurts to really frustrate Mark but eventually the rain will stop and we will start complaining about needing rain. Ahhh, it is beginning to hint at a normal life I think. Small blessings.

Tuesday, June 2, 2009

June 2, 2009



Caitlin's shirt that she wore to her doctor's appointment says "A Patched Heart is A Happy Heart...Thanks Dr. Lammoglia & Heartland Hospital"




Day 133 - We have had a wonderful 24 hours! Caitlin flew in yesterday afternoon and we met grandpa in Platte City for a delightful lunch. He told us about his trip floating down the Grand Canyon that he had just gotten back from. Today we headed back to Heartland Hospital and the cardio surgeon for Caitlin's one month post check and her heart check went great! Had a great visit with the doctor and his staff and got a great report as well. Followed that with a fantastic lunch with Ashtyn, Courtney and baby Cayden, then back to the hospital to see Joanie and Angel. Also got to Allison and her boys. From there we drove home and collapsed for a bit. Caitlin and Mark drove down to his folk in hopes of seeing them and delivering Caitlin's Father's Day gift to Grandpa Bill but missed them (they plan to try again) but did get to see all of Mike's girls at their house and deliver much overdue birthday wishes. Whew, it has been a great day but I for one am ready for bed! Anxious for tomorrow, a day of girly pampering then looking at wedding pictures together. We decided looking at them together rested would be a lot more fun.

Tuesday, May 26, 2009

May 26, 2009 Puppy & Wedding Pix


Day 126 - School is officially over for the kids. Work day tomorrow but they left with big smiles and excitement for summer. We had our daschund spayed and her "do claws" removed. She looks so sad but she bounced back quickly. Wedding pictures are now on line for anyone interested at http://flashesphotography.morephotos.com/mp_client/pictures.asp with a password of love. Caitlin is gaining strength each day and seems to be enjoying her new climate, life with Dustin and classes. She is so happy to have Dustin home and they are always off on one adventure or another. Chris and Jill are keeping busy in Austin with friends and pet sitting. They also had a great weekend. It sounds like Jill is also feeling better. My dad is rafting down the Grand Canyon this week. A trip he has taken a time or two in previous years but he loves it and each trip is a new adventure. I am anxious to hear his stories from his trip. Mark is dealing with the frustrations of the farm and rain but that seems to happen more springs than not.

Wednesday, May 20, 2009

May 20, 2009


Jill at 3 1/2 months. .............. I love her glow!

Day 120 - I always felt like growing up I had a very strong, intuitive connection to my mother and wanted the same thing for Caitlin and I. You watch them grow, guide them, love them and then let them go and hope for the best. Today for me wasn't a great day and for whatever strange reason my daughter must have felt that. I check my gmail once a day and as I was checking it today I discover Caitlin had forwarded me a song about parents and their children and butterflies. I click on the website and as I am watching "Butterfly Fly Away" Caitlin picks up the phone to call and say, "check your email." Intuitive connection, my hopes just rose. Caitlin seems to be doing so well and gaining each day. Her instruments arrived this week and for the first time in what seemed like forever (high school at least) she could play nonstop without getting winded or dizzy. She was so excited. Christopher is keeping me posted on Jill's pregnancy and it is so heartwarming to hear his excitement and I am thrilled he is sharing that excitement with me. According to Christopher Baby K is the size of an apple excluding its legs and will shy away from light if there were to place a flashlight on Jill's tummy. He forwarded a picture of her and she looks beautiful and happy. What started as a yuck day my children have helped turn around. The song Caitlin sent me is http://www.youtube.com/watch?v=0yLwmRK24Qc

Thursday, May 14, 2009

May 14, 2009

Day 114 - Pictures are posted at flashesphotography.com! The pictures truly show the miracle of what happened this winter and spring and the strength of everybody involved and the power of prayer. Teri did an outstanding job and right now speaking for myself I am overwhelmed looking at all the totally amazing pictures. I look at them, absorb them, go back and look at them again only to see pictures I don't remember seeing the first time. Feels like watching a movie again or rereading a book but better. I can't even express how wonderful it is to see the pictures - it is very much like it was to see Chris and Jill's pictures the first time. It is so fun and certainly helps when I get overwhelmed going through all the paperwork from this spring. Life is good! Caitlin and Dustin are going roller blading tonight. Jill is feeling better and fixing Chris supper (I do believe he is looking forward to it). I told him to enjoy it by fall he will be back to all the cooking again. Amazing how fast life can change.

Sunday, May 10, 2009

May 10, 2009 - Happy Mother's Day!!!!!!



Day 110 - Caitlin is feeling a lot better. Her swelling is decreasing which is comforting and her energy is increasing. Sounds like a nice combination. She and Dustin went roller blading yesterday and spent time with friends. Chris and Jill went mommy shopping finding a new glider rocker for Jill which my son now gets the thrill of assembling in the near future. Mark and I are off to KC today to spend some time with friends we haven't seen much of for a while. Will be nice to reconnect. Pictured above is my mother around the time she met my dad. My mother was my inspiration and my rock and my guiding force. She taught me more about life than I can ever recognize. Each new day I remember her as something typical happens and I can hear her words guiding me and calming me. It is my hope that someday my children will hear my words, thoughts, sentiments and love echo in their hearts.

Wednesday, May 6, 2009

May 6, 2009

Day 106 - Caitlin is doing well. She is working hard on her online classes and settling in at home. She has found out they weren't kidding about her bruising easily and they have discovered ice can be a friend. Fatique is still a problem but seems to be getting better. She will be back in a month to recheck every thing but from what we can tell all is going according to plan. Chris and Jill are doing well. Chris is making plans for mommy day for Jill. Mark, Caitlin and I had a wonderful lunch with Grandpa Sinnett, Uncle John, and Aunt Cynthia on Monday. Nice to sit back and visit for the enjoyment of visiting. Their boys are doing very well and Jacob's staff infection is all but a thing of the past. Josh is getting ready to go to Nationals with his TSA cyberspace engineering project. Grandpa is doing great with lots of interesting upcoming plans. This evening I got the thrill of visiting with Aunt Libby when she called. It is so nice and comforting to hear her voice and visit with her. She reminds me of the power of medicine and miracles as she too is living proof of them. Everyone's continued prayers and positive thoughts have been a source of strength for us and we appreciate them and look at the people in our lives who have benefitted from this strength.

Saturday, May 2, 2009

May 2, 2009



Day 102 - Do I dare say we are on the road to recovery? Do I dare hope (of course I do)? I truly believe Caitlin is headed there now. She is battling some soreness, bruising, fatique and dizziness but all can be considered normal for what she has been through and the medicines she is taking. She seems to be perkier in between her naps which is fun to see. She is with her friend, Amy, this evening enjoying a movie and some ice cream otherwise known as girls night at Amy's apartment. Last time they had girls night they customized aprons for themselves which is somewhat visible in the picture. Chris and Jill are continuing to do well. Jill's morning sickness teased her with a few calm days before resurfacing. Thanks to all for their continued prayers and good thoughts, I believe they are being heard.

Wednesday, April 29, 2009

April 29, 2009 8:00 p.m.


Some much needed rest and relaxation after getting the lines removed.

Day 99 - 8:15 - We got home about 15 minutes ago and Caitlin is settled on the couch. Her angel, Darlene, has called to check on her. Darlene has a sixth sense of just she needs to be there for Caitlin. Darlene was the angel who first stopped 99 days ago and called for help and God love her she continues to be there for Caitlin. Seemed like forever before she turned the corner but once she did things went very fast. Everything is looking good and she was sent home with a list of warnings and precautions but so far, so good. All three of us are totally exhausted and if we don't have much communication right now please forgive us. For the moment we want to focus on resting, recuping and obviously Caitlin wants to (and has) spent time visiting with Dustin. Thank you so much for your continued thoughts and prayers.

April 29 2:30 p.m.




Day 99 - 2:30 p.m. - Caitlin's blood finally thickened enough to take out the lines. The part shown is resembles a porceline coffee stirring straw more than anything. They were the actual ports that led to her heart and allowed for the scope and the devise to be delivered there safely. After removing them the nurses spent about 15 minutes applying pressure to the sight to get the bleeding under control. We can't imagine what it would have been if the blood had been thinner.

April 29, 2009 1:30 P.M


Pictured above are the lines leading to her heart that allowed for the camera and the medical devise to run to her heart. They are located at the top of her right thigh at the inner hip joint.

Day 99 - 1:30 p.m. - When your thin, your thin! Part of Caitlin's procedure involved using blood thinners so we are now waiting for her blood thickness levels for lack of a better term to go down. She started at 487 after surgery to 270 at lunchtime and now we are on a waiting game to see when it will drop below the magic number of 180. Once her levels drop below 180 the lines in her leg leading to her heart can be pulled out. While they do not hurt they are a definate annoyance to her so we patiently wait (not much other choice) for her blood to thicken.

April 29, 2009 12:25 p.m.



Day 99 - 12:15 p.m. - Caitlin got back less than 30 minutes ago and is doing fine. They ended up using a large heart patch on the opening between her upper chambers which was a surprise to the surgeon based on all the non-invasive information but he is very satisfied with the results after it was in place. True to Caitlin's outgoing, energetic personality they were not successful in having the medications they normally use knock her out. She did not feel any pain as such but did feel everything that went on. The upside to this is she was able to watch things on the screen and talk to them as they did it. According to the doctor and nurses she should have been completely out with what they administered but like I said she is active and apparently since her body could not move she put her mind into overdrive.

April 29, 2009 - 10:45 a.m.

Day 99 -
10:45 a.m. - Caitlin is in the hands of her doctor, his team, prayers of others, and God's will as I write this. She was totally at peace with her decision to proceed with closing the hole and has total trust in her team here at Heartland. Bit of a rough start in trying to get a blood sample and IV going. After multiple attempts they called in the IV team who attempted to locate a vein with the help of an ultrasound. After 3 or 4 tries by the IV team success finally occurred and we all relaxed especially her nursing team. Will keep you posted when time allows.

Monday, April 27, 2009

April 27, 2009 - Angels Among Us



Day 97 - Darlene Heflin who was the first person to stop and help on the first day of Caitlin's journey came by tonight to bring Caitlin a beautiful handmade autumn afghan. She said the Lord guided her to bring her favorite afghan to Caitlin through the guidance of one of Caitlin's namesake's, Ann Collins who is Darlene's best friend. It was amazing how this story is intertwining more and more. It was also fantastic to finally get to meet Darlene and visit with her. More amazing, was the chance to get to thank her face to face for her help and her strength. This all happened the day after Grandpa Sinnett arrived for lupper bringing along photos of the day Caitlin joined our family. There is a picture of a proud big brother holding this little tiny ball of hair fluff and lace. It is precious. Caitlin will be having the hole in her heart closed in about 36 hours and she is very comfortable in doing this and knows how many people are continuing to pray for her.

Thursday, April 23, 2009

April 23rd - Welcome back to the USA, Dustin

Day 93 - Dustin is back in the states and I know Caitlin is very relieved to have him home in Tucson after 16 long days which does not sound like a long time but felt like an eternity to her. Amy Ludwig and her parents came out tonight to pick up some stuff and it was so fun to watch the two girls visiting and hanging out again. Seems like it wasn't that long ago they were both in band together and hanging out. Amy will make a beautiful bride in just a little over two weeks. After a long night with an upset stomach Caitlin is doing well and ready to tackle her next hurdle and get closure for her heart. While it is a little nerve racking we know that she has come this far and God has led the way so we continue to put our faith and prayers in his master plan. Hopefully Jill has recovered from her migraine, I can remember the frustration of not feeling well and being pregnant.

Monday, April 20, 2009

April 20, 2009 - Happy Anniversary, Caitlin

Day 90 - Twenty years ago today we drove to Kansas City and appeared before the judge promising to hold dear to our hearts our daughter to be. Those same feelings can still come flooding back in an instant when I remember them saying, "Congratulations Mom." After a wonderful celebration at my parents' house we headed north to Maryville with protective big brother, Christopher, and my mother peering over the seat to look at Caitlin. My mother described her as a porcelin doll. Our family adventure had officially begun. Now twenty years later we are headed after school to Heartland to have her preop work done. It is an adventure we are looking forward to since it also means that closure is soon to come. Life has gone quickly between both Christopher and Caitlin. They both traveled very different paths from the first day and as trying and challenging as some bumps in the road have been I would not trade a day on either path.

Saturday, April 18, 2009

April 18 - Happy Birthday, Grandpa Bill!!!


Day 88 - A quick and heartfelt Happy Birthday goes out to Mark's dad, aka: Grandpa Bill. Bill is an amazing father and grandfather and he personally amazes me with his work ethic and dedication to his family, farm, church and community.
- Friday Caitlin received confirmation that they will be closing the hole in her heart. So in addition to her seizure medications which fortunately she is adjusting to well she will begin her preop regimen on Monday, a bit of a nuisance but a small nuisance in light of the gains she will be getting.
- True to a guardian angels spirit and foresight, Caitlin arrived home Friday evening to a package and blessing from her own guardian angel, Joanne Redd. It was a book filled with thoughts of reflection and a guardian angel keychain. Beautiful thoughts at a perfect time. Joanne Redd has the most amazing insight as to when the perfect time will be. There is no doubt she is a guardian angel.
- Jill is continuing to fight the baby induced morning sickness but again a nuisance well worth the outcome. My dad is at his alumni celebration with Christian Brothers High School. It is so amazing that the alumni continue to meet yearly and celebrate their lives together.
- Christian Brothers high school closed its doors many years ago and has been converted to Bode Middle School but the Alumni of Christian Brothers continue to meet. We are anticipating a wonderful weekend for my dad.

Thursday, April 16, 2009

April 16, 2009 - Life is so fragile, so unpredictable


JoAnn Marion
January 30, 1940 - April 16, 2009

Day 86 - This evening our family, friends, and community lost JoAnn Marion a dear friend and mentor who died unexpectedly from a brain aneurysm. JoAnn was the first person I worked with as an undergrad and she quickly became my mentor and friend. I student taught with JoAnn and both of children had her in school and we all were very fond of her as a teacher and a close friend. She will be missed by the community and our hearts are extended to her husband, Marvin, and her her local friends who had become her family.

Tuesday, April 14, 2009

April 14, 2009

Day 84 - Wow what a day. Went back to the neurologist at NKC who the NKC cardiologist has sent Caitlin to for a consultation. Dr. Ward just like Dr. Makos is amazing. What was shared with Caitlin today is that tests confirmed that she is continuing to have seizures in the same place that was noted while she was in the hospital. At the time she was in the hospital the hope was that it was a fluke break through seizure and Caitlin could avoid medicine but with the seizures continuing to appear in the same location that option is not to be. Dr. Ward did share some comforting news regarding the fear of brain injury that could have surfaced later. Fortunately the tests showed that everything was in the realm of to be expected in her situation and she and the doctors can let that concern rest. Like she said, to know for sure what created this unexpected journey will never be know for sure but she has no doubt that it was a blackout for one reason or another. Now that Caitlin knows what is going on the journey to get it under her control begins but it is a journey that now includes lots of answers and information.

Sunday, April 12, 2009

April 12, 2009

Day 82 - A beautiful day - lots of reasons to celebrate. My nephew, Jake, is home from the hospital and his staff infection is rapidly clearing. Chris and Jill are in the early stages of planning for Baby K, Caitlin is home and has heard from Dustin who arrived safe to his destination. She misses him obviously but selfishly it is great to see her, the next best thing would be seeing the two of them together. We pray for his safe return and have total faith it will happen. We are taking advantage of her time here and she is taking care of some doctor follow-ups so we are hopeful they all bring positive and informative news. We hope those of you reading this have had a wonderful weekend and enjoy this restful day of peace and celebration.

Thursday, April 9, 2009

April 9, 2009


Jacob's spring break right after Caitlin's wedding.

Day 79 - Headed to Kansas City tomorrow to see Jacob in the hospital. I must say this staff is wicked! They plan to go back in tonight again and drain another pocket. Dad says it is interesting to visit him. His spirits are good but any visitor dones the white suit, gloves, etc to prevent spreading the staff and to keep from bringing anything into Jake. Caitlin is due in tomorrow evening and she called grandpa to 'hook up' for supper. No big plans for Saturday at this point but time will tell. Please join us if you would like in praying for my family to return to health. I look forward to a wonderful family trip with everyone healthy.

Wednesday, April 8, 2009

April 8, 2009


The Sinnett Trio - Jacob, John Hamlin, Josh (the only thing that would make this picture better would be John's beautiful wife Cynthia)

Day 78 - My nephew Jacob is in the hospital for a staff infection in his lip but is gaining on that obstacle thanks to lots of patience, a quick oral surgeon and antibiotics. Please keep him in your thoughts and prayers for a speedy recovery back to normal high school life. Knowing Jacob all will be fine very soon. Wow, time flies around here. Caitlin is due back in Maryville this weekend. She has been so tired and sore that it will be nice to see her and wrap my arms around her. Still no confirmation on her insurance snap but we continue to pray and are keeping the faith that no news is good news. I know the two of them will miss each other more than I can imagine but I admire how well they are handling it so far. It has to be tough to be separated less than a month after getting married but circumstances have put them in a position that has shown us over and over again how strong the two of them are in both their spirit and their relationship together. Chris and Jill got a crib for Baby K which makes that all the more real not that it wasn't - it is just more visable to picute a crib in their apartment. It is fun to look at baby stuff again and know that all to soon they will be experiencing parenthood firsthand.

Justin and Abby's three adorable girls: Olivia almost 6, Madelyn almost 4 and new baby MaryBelle

Justin and his beautiful bride of almost 6 years
Happy Birthday tomorrow to my nephew, Justin. You have grown into an amazing man, husband and father. Hope your day is great is great and full of lots of "I love you daddy kisses"

Sunday, April 5, 2009

April 5, 2009




Day 75 - My parents began their life together as man and wife 52 years ago today. Two short years ago we had just returned from Chris and Jill's wedding in Las Vegas, I had gone to Thunder Down Under with my mom and Jill and the majority of her wedding party and celebrated a wonderful time with family and new friends. I watched Jill and Chris glow as they repeated their vows just like we got to see with Caitlin and Dustin. We plan to return once Caitlin is 21 so that she can enjoy several of the same things we did the weekend of Chris and Jill's wedding. On Caitlin's 18th birthday we celebrated mom and dad's 50th anniversary, an accomplishment Mark and I are striving for (both of our parents have had 50+ years of marriage) and now we watch our two taking those first steps towards a long and happy life together. Still no word on insurance approving Caitlin's surgery so we continue to pray and are in high hopes that no news is good news just like not hearing from the kids means that no news is good news and that they are enjoying their time together. I know that Christopher is under the weather today but he is in good hands with Jill.

Thursday, April 2, 2009

April 2, 2009

Day 72 - Had a wonderful phone call from Aunt Libby last night. It was so nice to talk to her even though my cell phone successfully cut us out a couple of times. She has such a calming way about it. Talked to Caitlin today. She is still trying to figure out how to finish the unpacking in the space they have. She enjoys married life and the friends they have made on base. It looks like Dustin will be leaving with the military in the near future although it should not be for very long if all goes well. She enjoys working out at the gym and working to be back to herself. Still no official word from insurance so our prayers continue that they approve her surgery soon. Chris and Jill are beginning to research baby stuff and verbally making some plans for Baby K. Today is my last day of being the same age as my brother, Michael. His birthday is tomorrow (making him a year older than me again) and I will hope it is a good one. Other than a quiet house there is little new here. Enjoy hearing from people and look forward to this summer.

Tuesday, March 31, 2009

March 31, 2009 Happy Birthday, Caitlin



Day 70 - Happy Birthday Caitlin! I breath a sigh of relief that this journey is moving in the forward direction that it is. I called Caitlin today and caught her at the gym walking on the treadmill which is a positive sign in my eyes. Her voice sounded stronger today that it has been so hopefully the treadmill to build stamina is doing exactly that. It has tried to spit snow here today and turned very cold for the last day of March but fortunately no snow that stuck around for more than a few minutes. Mark has a meeting tonight so I plan a nice quiet evening at home with the "rodents" aka - the dogs.

Monday, March 30, 2009

March 30, 2009

Day 69 - Today marks the end of life of the mother of a teen. I have watched both kids grow into amazing young adults with a great future ahead of them. Christopher and Jill have been married for a smidge over two years now and have settled into their own routine. Jill is still battling morning sickness which should prove to be a very healthy and intelligent baby (I wouldnt hope for anything less). Caitlin and Dustin are just beginning this new phase of their life. In a way I will miss the hustle and bustle of those teen years but in other ways it is so nice to marvel at the people my kids have become. While Caitlin and all of us continue to pray that the insurance glitch is overcome in the very near future I have total faith that hole in her heart will be fixed and she will become a much healthier adult as a result of it. She is having more good moments than not so great moments but I can't wait for the day that she is back to herself. Then again, after a life changing experience she won't be back to her old self again but we will accept what is in her cards with a grateful smile. What she and Dustin have worked through together before their marriage is amazing. They have handled adversity far better than numerous couples with 10-20 years together have had to handle. Okay, enough bragging about my kids as my years as the mom of teens end but thanks for listening. Tomorrow begins a new chapter.

Saturday, March 28, 2009

March 28, 2009 - Happy Birthday Dustin



This is Alyssa, Caitlin and Dustin the weekend they met.

Day 67 - Busy end of the week. Drove to St Joseph yesterday to take some medical records to Caitlin's cardio-surgeon. I/we like this group more everytime we deal with them. Stopped by Heartland and saw Angel and Randy (Caitlin's lifeflight nurse). For as busy as they are it amazes me how excited they were to hear how well things were progressing. We are so grateful to everyone at Heartland for going so far above and beyond anything we could have ever asked for. We still do not have confirmation from insurance but it seems that the pieces of the puzzle that are needed are beginning to fall into place. We continue our prayers that it works out and have glimmers of hope we are being heard. Spent some time shopping and then had a light supper with a dear friend. It was so enjoyable to do something as simple as dinner with a friend. Is look forward to doing more of it. Told Chris and Jill I practiced my grandma skills today babysitting and had a great time. The energy little ones have is endless as is their acceptance and love. Can't wait till Chris and Jill get to experience this also, they will be wonderful loving parents. Talked to Caitlin and Dustin to wish Dustin a happy birthday. They were having an enjoyable day together. As for the old March coming in like a lion and out like a lamb I am not so sure about in Missouri. We started March with a snow storm and so far Maryville has had snow but not the storm St. Joseph and Kansas City appear to be getting.

Wednesday, March 25, 2009

March 25, 2009

Day 64 - This journey we have been on has truly reaffirmed to us the power of prayer and we are asking that those of you who will will continue to pray. Caitlin's cardio-surgeon called today with a surgery date pending insurance approval which is where prayers are needed. For reasons more complicated than I can understand it is not uncommon for insurance to throw up a road block to the surgery to fix the hole in her heart. The surgeon is confident in his decision to fix her heart but now we all wait and pray for the documentation to fall in line with the insurance company. Prayers have brought us this far and we have total faith that prayers will carry Caitlin through this journey with the insurance company and to a more complete recovery with a heart that is no longer "holey" but instead holy in spririt and faith. She sounds so happy when I talk to her although to paraphrase her, she is tired of being tired. I talked to Chris today and they weathered the hail storm in Austin today with a bit of traffic drama but all ended up well. He was getting ready to cook supper for Jill when I talked to him.

Tuesday, March 24, 2009

March 24, 2009

Day 63 - Quiet day in Maryville. Talk to Caitlin for a few minutes. Overall she is doing okay, still not back to herself but improving each day. They are still wading through a sea of boxes that they are trying to unpack, Dustin is back at work, trying to finish adding Caitlin to all the paperwork, Caitlin is trying to finish paperwork to start back to class and in the meantime have a normal married life (now what that is who knows). Chris and Jill are doing fine. Baby Kinman is fond of making Jill sick but the old wives tale indicates that she is carrying a healthy baby according to her morning sickness. Mark and I continue to chisel away a step at a time to recapturing the house. Day by day, normal for us is beginning to settle in.

Sunday, March 22, 2009

March 22, 2009



Day 61 - Caitlin and Dustin are busily unpacking in Tucson. From what I can gather she is being careful not to get overtired. I think the spot in her abdomin helps remind her to be careful. Chris and Jill had a quiet weekend with Chris judging a BBQ contest and Jill having a much needed rest from what I can gather. My new medicine and/or a restful weekend seem to be helping with my blood pressure which is a relief. Recieved a package of pictures from my dad. Some of them are priceless. Hope to get test results this week from some of Caitlin's testing that was done just prior to the 14th.

Friday, March 20, 2009

March 20, 2009 - Happy Anniversary tomorrow Bill & Martha


Day 59 - Exhaustion has won and I have not been good at posting these last few days and I apologize. Caitlin and Dustin did make it to Tucson a little before 8 our time on Wednesday after a 36 hour trip via a Pensky moving van. They were able to get the keys to the house on Thursday and by the time paperwork and other details were finished they had enough time and energy to get their bed, bed linens that Sandi gave them and a few clothes off the moving truck before collapsing for the evening. I got a text from them after my doctor appointment today and they were in the midst of more paperwork (lol). Her spot in her incision line is still giving her fits but she will reevaluate after she has had time to get some rest and get settled. Had a wonderful lunch with dad before Ellen and I headed north. Chris and Jill seem to be doing well as are Mark and I. We are in the midst of getting reintroduced in our new roles but find the time together relaxing.

Tuesday, March 17, 2009

March 17, 2009 Happy Anniversary Chris & Jill



Day 56 - Happy Anniversary, Happy St Patty's Day, Happy Moving Day, Happy Baby Day!!!! What a day my kids have given me. Caitlin and Dustin pulled out this morning just before 7:30, I have spent the day getting my arthritis under control so that I can enjoy my students tomorrow, Mark is puttering around the house figuring out our new place in life, Chris and Jill are celebrating their second anniversary having a sonogram and seeing Baby Ks heartbeat. Both my girls are fighting tummy issues today. Baby K has let its momma know it is there and has decided like its father that morning sickness isn't just for mornings. Jill is handling it well but having been there I wish she could skip that part. Caitlin's stomach that was painful yesterday is refusing to calm down. Not sure if it is something to worry about or just reacting to the past few days with the pain it is giving her. They are watching it close and so far it hasn't gotten any worse from yesterday but it isn't getting better. Hopefully given time the pain will subside but they are smart and will seek help if it gets worse. Patience and prayer continue to be the best at the moment.

Monday, March 16, 2009

March 16, 2009

Caitlin and Grandpa Sinnett. Amazing!!!!

Day 55 - Packing is mostly done at the house and we are hanging out waiting for the guys to get back with the truck. The weekend finally caught up with Caitlin and she is really wiped out and sore but still doing her best to forge ahead. She keeps looking up everytime she hears something hoping it is Dustin pulling in. She has been pretty productive today in spite of her fatique and soreness especially considering the weekend caught up with me yesterday and seems determined to give me fits for the same number of days I pushed myself too far. It was so worth it though. She was beautiful and just glowed. Amazes me to think back that two years ago today at this time we were in Las Vegas getting ready for Chris and Jill's wedding and now they are getting ready to be parents to our upcoming grandbaby.

Sunday, March 15, 2009

March 15, 2009

The above picture is from Friday the thirteenth. The veil she is wearing is my veil from my wedding 28+ years ago. Her bouquet was a gift from her maid of honor, Heather Smith. Also pictured is flowergirl, Kaycie Johnson; Dustin; Dustin's brother, Aaron, and Father Martin.

Day 54 - Wow, what a beautiful! Caitlin just glowed as she walked on her daddy's arm down the aisle to Dustin. It is amazing to watch God's plan unfold and even more amazing to reflect back on this journey. Miracles just happened all around us from our friends and family jumping in to save our sanity and help get things ready for a beautiful day to our son and his bride of two years this Tuesday announcing the upcoming addition to our family, they will be wonderful parents to our grandbaby in waiting (we decided if we waited patiently it will just get more and more adorable in the next 8 months). Caitlin held up very well in consideration of everything. Mary Jane, Shirley and Dustin stayed with her throughout the day to preserve her health and yet balance it with a dream day for her. We can't wait to see the pictures and everything they did throughout the day. To Ellen, Abbotts, Gardners, Throms, Hageys, Henegglers and a hundred others who jumped in whenever and wherever to help. Mark and I would have been lotst without everyone's help and to my dad who patiently kept me as calm as possible just by being there. I will say for just 7 1/2 weeks out Caitlin did amazingly well with short breaks throughout the day and a little patience I think overall she truly had it all...a beautiful day, a beautiful service, lots of friends and family, lots of dancing especially with her Grandpa Sinnett and her daddy (Dustin is an obvious in all of this), time spent with people she and Dustin love and a drive into the late evening to begin their life together.

Thursday, March 12, 2009

March 12, 2009

Day 51 - Today was interesting, peaceful, and totally enjoyable for me. Caitlin put her dress on first thing this morning and she looked beautiful. We headed off to appointments again today and worked through more of the maze. She still needs to visit with one more tomorrow but hopefully it wont take long. She is at about 80% and strong enough to get married. The last 20% will resolve itself in the next few months. Along the way today Caitlin managed to squeeze in some time for pampering which was fun. Dustin flew into Kansas City tonight and headed home to spend some time with his family and groomsmen. He is planning to come up in the morning. 48 hours from now things will be beginning to calm down.

Wednesday, March 11, 2009

March 11, 2009

Day 50 - Hard to believe we have finally arrived at the point we are almost to high gear for the wedding. 'Grandma Thelma' took Caitlin in today to get her nails done for Saturday. Grandma Martha and Grandpa Bill came up to touch base and keep us posted on some of the many things they are doing to help out. Grandpa Sinnett touched base with us and will head up tomorrow to join us and fix a wonderful Irish meal. Caitlin did meet with a different cardiologist yesterday who we feel is more on the same page as far as timing and philosophy as we are which was a great relief. We worked on moving packed items to the garage and Caitlin held up fairly well. I imagine it helped that she finally felt well enough to let the chiropractor work on her back and she felt much better after her treatment. Yeah!

Tuesday, March 10, 2009

March 10, 2009

Day 49 - Caitlin saw a different cardio surgeon today and walked away feeling like she had really been heard and feels very confident with him. Also stopped at Heartland Hospital and saw some of the amazing people who played a vital part in her recovery those first weeks. Randy, her helicopter nurse, was in the hall and she was thrilled to see him and I truly feel he was glad to see her doing so well. Also saw Joanie, Angel and Kim along with a few of the people from fourth floor. It was a fun few minutes seeing them again. Headed home to a school program and then to some relaxation. Four days to go until she is married. Wow, hard to believe this journey we have walked through with her. Lots of prayers, lots of amazing people and lots of love all continue to play a huge part in her recovery process.

Monday, March 9, 2009

March 9, 2009

Day 48 - Caitlin had a relatively calm day today. She, her dad and I enjoyed a dinner out with her dance families which was a welcome break in our routine. No word back yet on any of the tests that were run the end of last week but to a certain degree we were not surprised to not know anything yet.

Sunday, March 8, 2009

March 8, 2009

Day 47 - Caitlin and I headed to Kansas City with her girls for competition yesterday. The girls performed beautifully and Caitlin was so proud of them. She made it to church today and to a small personal show with a small group of lifelong friends that was very nice. Shortly after it ended she collapsed on one of my best friend's couches for a nap. Shirley, Ellen, Thelma and I cleaned up and then Shirley and I worked on some computer items while she napped. Overall I feel like this is the first weekend I have seen her have strength and stamina and the same time and it was so nice to see. After her nap she rallied to get a few things taken care of at home. Inch by inch she is beginning to make some things a cinch. Yeah!

Saturday, March 7, 2009

March 7, 2009

Day 46 - I apologize for not posting yesterday. Caitlin had an EEG and MRI first thing yesterday morning and while Mark and Dustin (by phone) took on the job of keeping her awake all night I didn't sleep well at all because of the commotion in the house. If the puppies are any indication, after we left yesterday morning, they went outside for a few minutes then came in and voluntarily went straight to their kennels and looked at Mark helplessly as if to say, let us go to bed. I gather it was quite humorous. No results until next week but we all made it through them with a team effort. Stopped and did a quick errand before heading home to find ourselves in bed by late afternoon. One week from today and Caitlin will be getting married. At times we feel ready with the details and other times I feel totally overwhelmed but either way she will get married and she will be beautiful in more ways than I can count.

Thursday, March 5, 2009

March 5, 2009

Day 44 - As a dear friend put it Caitlin hit a speed bump in the road. We are looking at this speed bump as a chance to take a different path to getting things resolved. Kansas City called this morning cancelling the meeting with the other cardio surgeon and in general bursting a bubble in the time frame they themselves had laid out just last night. So in short this speed bump tells us this was not the location that was meant to be of the most help to Caitlin. They did give her names of a cardiac place in Tucson and the Mayo Clinic in Scottsdale. Who knows maybe one of them is the better place. It would have been nice to have known earlier that the time crunch we were in and had shared with them each time we spoke was in fact going to be a major problem but we wont dwell on hindsight - it isnt worth our energy. We are moving forward tomorrow with other options. On a brighter side Caitlin and Dustin received some wonderful gifts in the mail today and it was so fun to hear her squeel resurface. The table centerpiece from Nashes matches the teapot sent to them from Aunt Libby. Couple that with the place settings from cousin Karyn & Chad and they will have a beautiful kitchen table. Other wonderful kitchen items came from Cummins, a wonderful family Caitlin has always admired. By days end we have come to grips with the rollercoaster ride we all just took and remain grateful we could take the ride with Caitlin.

Wednesday, March 4, 2009

March 4, 2009

Day 43 - Caitlin and I headed to meet with a cardio-surgeon in Kansas City today. We will be meeting with his partner on Friday at which point decisions should be finalized in regards to a plan. Step by step, inch by inch - Caitlin's goal is to be as healthy as possible to start her life with Dustin.

Tuesday, March 3, 2009

March 3, 2009

Day 42 - Caitlin and I headed to a check-up with her surgeon, Dr. Long, today. He is totally amazing, very intuitive, and almost like a father bear when it comes to Caitlin. He had lots of insight to what is continuing to go on and about the trauma in general that put both Caitlin and I at ease that this is all part of the process and part of her destiny. Her x-rays pleased Dr. Long and we are still waiting to hear about her blood work-up. Next time she is home they will rerun the CT Scan to see how her liver and spleen are healing but with the swelling still there it is better to wait right now. Stopped at Heartland to see some of the guardian angels there and it was nice to see those beautiful familar faces again. Headed home to receive some very inspirational cards from Joanne & Jim. Joanne & Jim seem to have wonderful timing as to just when cards with words of inspiration need to arrive at the house. Caitlin can't wait to see them at the wedding and put her arms around them.

Monday, March 2, 2009

March 2, 2009


Day 41 - Time feels like it is ticking away. We went yesterday to meet Angel and have Caitlin's makeover done. I have to admit she will be a beautiful bride. Angel did an amazing job with the makeover and added to the excitement of what is to come. She slept in this morning but then woke to tackle quite a bit of her packing today. Glad to see her feeling up to doing it, sad that she isnt just moving across town but that is not the plan and we are okay with it. Caitlin got confirmation today that she will be meeting with a cardiac surgeon middle of this week to discuss a plan for her heart. We are all excited and anxious at the same time. It is an interesting road to travel with lots of learning along the way and it certainly has put life in perspective.

Saturday, February 28, 2009

February 28, 2009

Day 39 - Went to Dustin's sister's (Melissa) concert last night and it was very nice. Before the concert we went in so she could practice her instruments but by that point the day had caught up with her and she was frustrated when she couldn't practice as long before getting winded and pain trying to creep in. Caitlin did enjoyed seeing people again after a very long time and Melissa sang very nicely. Today we have had a crazy day with the snowfall that landed and other obstacles cancelling previous plans. So we are having a early dinner and town and then off to a movie before Caitlin goes to help with a friends middle school birthday party.

Friday, February 27, 2009

February 27, 2009 - Happy Birthday Grandma Martha

Almost all of the Kinman Girls: Pat, Afton, Caitlin, Whitney, Grandma Martha, Carma (unfortunately Jill was unable to be there - Texas is great but so far away)

Day 38 - Happy Birthday Grandma Martha. Caitlin and Mark ventured down the hill to deliver birthday wishes to his mom before she took off for the day. The hospital called later that morning to schedule more tests that will hopefully help decode more of the mystery. Caitlin spent the remainder of the day working on the stationary bike and packing before her fatique wore out for a part of the afternoon. She is hoping to feel well enough to go into Dustin's sister's senior recital this evening. Life feels like a series of small steps but the majority of them are headed in the right direction!!!!

Thursday, February 26, 2009

February 26, 2009

Day 37 - Yummy! Caitlin fixed dinner tonight for Mark and I and it was delicious. She also worked out sporadically on Sandi's stationary bike trying to build up more stamina. Fatique and soreness finally won out and she was worn out by seven and headed off to bed but hopes to get more done tomorrow. Overall a fairly good day.

Wednesday, February 25, 2009

February 25, 2009

Day 36 - The last two days have rolled into one it feels like to me. Headed to a specialist in KC today who was very nice and seems to be very in tune to things. She gave Caitlin and I a lot of insight as to what is going on and all the pros and cons to what has been found. We walked away with a lot of good information to think over. Stopped to see her photographer. Teri is amazing and I know she will be in very protective hands on the day of the wedding. It is great to have a photographer who cares so much. Also stopped to see my dad who was doing great. He gave Caitlin some of my mom's hats that look adorable on her. We visited about the wedding plans a bit before heading north. All in all a very productive day.

Tuesday, February 24, 2009

February 24, 2009

Day 35 - Yesterday went fairly well once Caitlin's blood pressure calmed down. It started out really low at 7:00 a.m. (82/63, 77) and stayed low throughout the day but then today it has jumped to the higher side today at 7:00 a.m. (118/94, 110) which baffles me but she seems to be perkier. While still sore I see more and more of her each day, last night while working with her dance girls she actually went down into the splits. And got frustrated that she couldn't go into town to practice because we were awaiting a phone call from the doctor. As usual by nights end she was spent and crashed early but I feel like we are seeing more spurts of normal as each day progresses. Now if we can get her heart mystery resolved but they are working on that and we continue to pray the pieces will fall together.

Monday, February 23, 2009

February 23, 2009

Day 34 - Caitlin's day was busy yesterday with a visit from a college friend then off to try to practice. After repeated efforts she cut practice short due to dizziness, breathing and the beginnings of a migraine. Once home and napped she did improve a bit but headed to bed early. Sleep is the best thing at the moment for her between her activities. It is fun to watch her personality starting to come back out.

Sunday, February 22, 2009

February 22, 2009



Day 33 - Caitlin had a good day yesterday. Got a lot accomplished between naps including practicing her music, going to Walmart, Rods, church and spending the evening with the Heneggler trio not to mention visits with Dustin throughout the day. She also headed north with her dad and I to take flowers to Darlene, one of her guardian angels the day of the accident. A very productive but exhausting day. It is nice to see her activity level start to increase in spite of it creating long restless nights.

Saturday, February 21, 2009

February 21, 2009

Caitlin is pictured displaying the teapot Aunt Libby sent to Dustin and Caitlin. They were thrilled to get a blue and white teapot. It is beautiful.

Day 32 - Caitlin and Dustin received some wedding gifts this week. So this morning they webcammed and opened wedding gifts. It was fun to watch technology in action and watch them open gifts together 1400 miles apart. Caitlin's test went well yesterday as far as we can tell. We won't know the results until the first of the week but Caitlin's body handled it well and she is recovering nicely from it (sleeping a lot).

Friday, February 20, 2009

February 20, 2009

Caitlin slept peacefully through most of the day after her procedure/test for her heart done today.

Day 31 - Caitlin had a more typical day yesterday with good periods and bad periods throughout the day. It seemed like she was having more good periods than bad (yeah!). She webcammed with Dustin lastnight and it was fun to see her glow and hear her giggles again. Her tummy gave her fits along with her ribs but she hung tough through it. We go today for an outpatient procedure/test to see if they can get a more definitive picture of what is going on. We pray that these upcoming tests will reveal what it is they need to see to get a solid gameplan in place. Good news yesterday was the possibility of maybe having found a car. We did test drive it and will see how this possibility unfolds itself.

Thursday, February 19, 2009

February 19, 2009

The Kinman Girls - Pat, Afton, Caitlin, Whitney, Martha, Carma

Day 30 - Yesterday found Caitlin feeling better than Tuesday. I think a day in bed sleeping certainly helped. She is still frail but is working hard to gain strength. Now if she can just figure out how to pace herself. We met with her DJ for the wedding and got the music ironed out. We are totally confident her wedding dance will be just what she has always dreamed about. By the time we got home my fatique was showing and by early this morning I was taking migraine medicine in hopes it would conquer my migraine in time for school. Unfortunately my best efforts were in vain until just before eleven o'clock this morning when I started seeing relief so both of us are having a quiet day other than her doctor's appointment this afternoon. It is nice to have occassions to write about the more 'normal' events of life. We are gaining in this journey!

Wednesday, February 18, 2009

February 18, 2009

Day 29 - Four weeks ago today our world turned upside down. What should have been a relaxing day of getting to feel better (I was home sick that day) and being pampered with the Sprite Caitlin had gone after that morning turned into a rollercoaster ride in the blink of an eye. On the positive side we are on a rollercoaster and lots of discoveries have been made as a result that otherwise probably would not have been made. First and foremost is to love one another and to deal with what is and realize the future is a promising thing. While there have been disappointments like not getting to fly yet and the chronic battle with fatique there have also been lots of bright spots. Her doctor called yesterday wanting more tests to develop a clearer picture of the game plan. He is ordering a transesophageal echocardiogram as well as a another look at her neurology. Small steps to continue helping to unfold the mysterious pieces of this puzzle. She was totally exhausted yesterday and we have not seen her that exhausted in a long time but by evenings end Caitlin was beginning to rally for a short bit. Her spirits are good and she lights up when Dustin calls.

Tuesday, February 17, 2009

February 17, 2009


Day 28 - Caitlin had a cardiac stress test and echo-cardiogram yesterday. It went so much better than the first test they did last week. The staff was amazing and very patient working with her and her recovery process. The tests confirmed what we already knew about her heart so now we wait and see what the recommendations are. Caitlin is frustrated in not healing as fast as she would like to. Her previous set backs she bounced out of so fast she (and us) just assumed her personality and determination would reap the same speedy results. Unfortunately with the magnitude of all of this we have had to come to the realization that we need to be patience (apparently she is not the only one who lost their patience button). As frustrating as it is we will be patient and remain grateful that we have been given the chance to be patient even when it is not convenient for us. In retrospect she has gained an amazing amount of ground from where she started and continues to push forward.

Monday, February 16, 2009

February 16, 2009 - Happy Birthday Jill


Happy Birthday Jill!!!!!!!!! Hope my son spoiled you rotten. Pictured above is my beautiful newest daughter on her wedding day!
Day 27 - Today is my daughter's (technically daughter in laws) birthday. I hope she has a wonderful day. Caitlin has a test early today in Kansas City and then we will see what the day brings. She was so worn out yesterday that she was in bed before 7:30 last night. Was able to introduce Dustin's mom, Taresa, to Father Martin yesterday when I was showing her the sanctuary. Father Martin will be marrying Caitlin and Dustin and himself has been recovering from being ill but as usual was in great spirits.

Sunday, February 15, 2009

February 15, 2009

Day 26 - Today was an eventful day starting with a great breakfast of homemade Monkey Bread, although we did find out it is possible to melt a bundt pan. Caitlin made it to her household bridal shower today by Aunt Carma, Whitney and Afton. It was amazing. Carma and the girls are amazing in themselves and wonderful hostesses as well. Several of Caitlin's close friends came and people she adores. Dustin's mother made it up from Pleasant Hill along with his sister. The shower was wonderful and Caitlin and Dustin received many nice things. The day was fantastic but by suppertime Caitlin was exhausted and all other thoughts and hopes for the day would have to wait a day or two as she headed to bed. The mind is willing and ready and just waiting for her body to catch up to her. It will in time but its back to that patience button they forgot to put back in during her surgery.

Saturday, February 14, 2009

February 14, 2009 - Happy Valentine's Everyone

Caitlin talked to a college recruiter from Arizona yesterday. They talked about her love of music, her dancing, and her goals for the future regarding her education and plans with Dustin.

Day 25 - Happy Valentine's Day everyone. Amazing how time goes by quickly. Caitlin is returning more to herself each day. She still tires easily and deals with the pain that goes with the accident but that is such a small price to pay for having her here to celebrate with. She called Ellen yesterday and thanks to Ellen's time and an amazing hair salon (thanks Chris and Heather) who worked her in she enjoyed a girlie afternoon. She looks adorable and is in high hopes of her "do" surviving until the end of the weekend. So far so good. It is amazing what a trip to the salon can do for a girl. She came home after and totally crashed on the floor. The dogs jumped over her, licked her, pulled on her scarf, and numerous other dog tricks designed to get attention and my daughter layed there and didn't flinch until one of the dogs walked over her tummy and she sat straight up. Have plans today to have dinner with the family and then on to a quiet evening. She has already talked to Dustin and she just glowed. It was nice to see that glow coming back in her as well.

Friday, February 13, 2009

February 13, 2009


Day 24 - Took Caitlin yesterday for one of her cardiac tests only to have her get part way through it and have them discontinue it. Apparently it was too painful for her around her surgical site and abdomin and though she told them about her recent trama and they looked at the incision no one thought it would prevent finishing the test but it did. So we headed home with Caitlin in pain and both of us frustrated. Hopefully they got enough info from what she did get done to tell us something but only time will tell. Long day for both of us but the sun was out and no snow storm yet which was nice.

Thursday, February 12, 2009

February 12, 2009

Day 23 - I headed off to work yesterday for the first time in three weeks. Anxious to see my students but felt a bit like a fish out of water and at times overwhelmed to be able to work where I do. I knew Caitlin would be fine between her own abilities, cooking with grandma and lots of people checking in on her if needed but it felt a bit like first day of school again to me which resolved itself in the first 10 seconds of seeing a student's face and hearing their delight to see me back. Caitlin handled the day well, exhausted by midday but rallied after a nap. Her new medicines seem to be helping make things more managable. She was in bed really early but had managed a fairly long day for her. Mark is still fighting his bug and with his fever he is unable to be close which is hard on all of us. Dustin sent an early Valentine's gift which definately brightened Caitlin's afternoon and evening.

Wednesday, February 11, 2009

February 11, 2009


Day 22 - Caitlin and I attempted to go to a local doctor yesterday morning but after waiting in the waiting room alone for more than 40 minutes at 9:15 in the morning we headed home after her color drained from her face and she began feeling really bad. Brought her home to rest for a while and called her surgeon for advise to her pain increasing so much at night. He worked with us on some adjustments and she did have a better night last night much to our relief. The local doctor is very nice but the overbooking of his schedule that created the long wait was more than her body could tolerate. I tried calling back to reschedule after we got home but after being on hold 15 minutes (it seemed liked forever) I decided that it was just not meant to be for her to be seen locally. After a long rest Caitlin began trying out her musical skills. Piano is a bit easier at the moment mainly because it does not require the extra breath support her flute needs but she enjoyed doing both. Bit by bit she is trying to resume what is normal.

Tuesday, February 10, 2009

February 10, 2009


Day 21 - Caitlin was up and about walking laps in the house yesterday morning which was encouraging to all of us. Took a short nap after a long night and then up again when Dustin called to give her the news. They got word that they will be getting base housing when they arrive after the wedding which brought a great big smile to her face. She hopes to see the house soon either in person or if possible by picture phone before she goes to visit. She made it out of the house for a while last night to verbally coach her dancers which was really exciting for all of us to see. By evening's end she was totally wiped out but had made big gains in a short period of time. Off to an appointment today and hopefully more walking and resting. We are in high hopes that they can figure out how to help her make it through the nights better. She begins each day so exhausted it amazes her dad and I how much she is accomplishing.

Monday, February 9, 2009

February 9, 2009



Day 20 - I've come to the conclusion that nights are just going to be tough for a while or at least until she can break this break through pain cycle. Caitlin's day yesterday started rough but by midday she was feeling strong enough to take a short walk on campus. It was nice to see her up and walking into almost the middle part of campus before walking back to the car. Her incision is doing well although she had one spot that decided to surprise us and start bleeding but just like when she was little a bandaid and a little TLC. At somepoint we hope to meet the two people who stopped that day and played a critical part in keeping Caitlin with us. They are unsung heroes for being there.

Sunday, February 8, 2009

February 8, 2009


Day 19 - After a long restless night we had a quiet day at home yesterday which was great. We did venture out for a drive to enjoy the beautiful sunny sky. Caitlin is trying so hard to bounce back as quick as possible. The looming flu bug in town is frustrating since she can't be around lots of germs after all her body has been through which keeps her from church and other areas that are fairly well populated. Unfortunately, her dad woke up sick this morning so he is off in one part of the house and she and I are staying in another part of the house. Her right side, the area around her liver, is still giving her fits but we are assuming with time and all of her walking things will calm themselves down. We tease her that her patience was taken during surgery since she wants everything better now, not tomorrow or next week. She visited with a few family members by phone, facebooked some friends, and at one point even got up and played the piano for a while to unwind. We appreciate everyone's patience and prayers. We think heaven has been bombarded but we are so thankful they are listening.

Saturday, February 7, 2009

February 7, 2009

There is no place like home!!!

Day 18 - We headed to the cardio-specialist yesterday and had some interesting but nicely surprising twists when we asked for his professional opinion. He said while Caitlin has PFO (hole in the heart) more often than not it is the better medical advise to look to other simpler options for it rather than surgery since the surgery itself carries multiple risks we are not sure we want to consider taking. When you look at Caitlin and realize what a miracle it is she survived and what a miracle it is God was there to black it out of her memory - we aren't sure we want to take any risks with her health and neither is she. The cardiologist spent a great deal of time discussing Caitlin's health history in detail with her and said that there are some things to check out based on her history and will be running tests to determine the best option especially in regards to her syncopy and PFO. He also explained that in these situations they can only confirm the specific problem about 10% of the time but the tests will rule out life threatening problems which is definately a plus and hopefully guide us to the best option for her care. Caitlin really felt comfortable with him and really likes the possibility of looking at non-surgical options for controlling her health situation. We headed home after a light lunch and she quickly fell asleep from exhaustion. They told us at dismissal she would be doing a lot of sleeping especially this first week and as glad as we are to have her home with us we respect her need to sleep and will catch up on things later.

Friday, February 6, 2009

February 6, 2009


Day 17 - Caitlin's day went well yesterday and she was actually able to eat some breakfast and lunch before the nausea hit at suppertime. Dr. Long her surgeon is as protective as a father bear and visited with us at length about precautions to ensure a speedy recovery for Caitlin before sending her home. She is feeling overwhelmed by everyone's kindness and concern and then in the mail Thursday afternoon came the most incredible gift from Mark's cousin Julie and her youth group and fellow church members. She had told Caitlin a week ago that they were praying for her along with countless others and that in itself was a tremendous gift. Then in Julie's package was a beautifully knitted bed blanket/prayer shawl. As you can see by the picture Caitlin promptly wrapped up in it as she read the materials Julie enclosed. The knitters of The First Church of Christ in Bedford, Massachusetts enclosed a card that read: "May this gift knit for you with love be a mantle and sign of God's healing presence. May it warm you when weary. May it surround you with ease in your suffering. May it encircle you iwth caring when you are in pain. May it comfort you when you feel alone. May it remind you of God's abiding love. Amen" A wonderful gift with a tremendous message at a perfect time. Thank you to Julie, her youth group and the members of the First Church of Christ and all those who continue to prayer for Caitlin and her loved ones through this journey. You are truly remarkable.